As a parent you hope you can teach your kids a few things. That is our job, after all. That, and embarrassing our kids when they become tweens and teens. Or are those considered perks? I digress… While I’m trying my best to be a good teacher, I am amazed at how many things my … More The Unexpected Thing I Learned From My Daughter
My 5 year old daughter throws fits. She kicks, she screams, she runs. When she misses her nap, it’s worse. When playing with other children, my daughter sometimes hits. Most of the time it’s out of anger. Sometimes, it’s just for fun. At times, my daughter makes it her mission to do the opposite of … More The Pressure of Raising a Child With Down Syndrome
Tis’ the season of stress! I swear, if we even think about getting together with friends or family, someone in our house gets sick. And making plans to Christmas shop almost always means something in our house or garage will break and require expensive fixing. Forget visions of sugar plums. I dream of wine and … More My Own Little Joy To The World
Day #31 “Thank you.” I started this blog for personal reasons. Writing helps me process emotions. Raising Willow stirs up many. I anticipated a few friends and family members reading my blog. I always try to keep it updated with her latest accomplishments and obstacles. Still, I never expect people to read. So if someone … More Day 31 – Down Syndrome Awareness Month
Day #30 Never be afraid to ask questions about Down syndrome. Questions help. Assumptions hurt. This is a picture of a woman who knows diddly squat about Down syndrome. Flash forward 5 years…. This is a picture of a woman who knows a lot about Down syndrome. Not everything, but pretty close. My daughter, Willow, … More Day 30 – Down Syndrome Awareness Month
Day #29 There are 3 types of Down syndrome. Trisomy 21, Translocation and Mosaicism. Trisomy 21, the most common form, is when a 3rd copy of the 21st chromosome is present in every cell of the body. Translocation, the most rare form, occurs when a piece of the 21st chromosome breaks off during cell division … More Day 29 – Down Syndrome Awareness Month
Day #28 In a survey of more than 3,000 families of individuals with Down syndrome, 97% of brothers/sisters, ages 9-11, said they love their sibling with an extra chromosome. (www.brianskotko.com) (Note: Today’s post is written by Willow’s big sister, Bella) My sister Willow is so kind and careing. She aways likes to play with me … More Day 28 – Down Syndrome Awareness Month
Day #27 While there are certain characteristic physical features that set people with Down syndrome apart, people with an extra 21st chromosome usually resemble their families more than they resemble one another. Willow looks a lot like her sister. In fact, Bella often tells people they’re “like twins.” When Willow smiles, I see her brother. … More Day 27- Down Syndrome Awareness Month
Day #26 Recent surveys in the U.S. of parents, doctors, and medical students indicate that outdated and inaccurate information about Down syndrome is being provided to pregnant women who are prenatally diagnosed or at birth of their child. (www.globaldownsyndrome.org) The doctor that delivered Willow’s diagnosis of Down syndrome was blunt but kind. He worked in … More Day 26 – Down Syndrome Awareness Month
Day #25 Down syndrome is not a disease. Willow is not suffering. Does this look like a girl in pain? Willow is a happy little girl. At the moment, she’s also a healthy little girl. She is not suffering! Willow’s extra 21st chromosome cannot be cured. It isn’t going away. Medicine won’t do anything … More Day 25 – Down Syndrome Awareness Month
