The Story of 2 Sisters, an Extra Chromosome and an Extraordinary Bond

“Sissy!” It’s the clearest word in Willow’s vocabulary. It’s also the word she says most frequently. I’m talking at least 50 to 60 times a day. I kid you not. Just ask the “kid” she’s calling for, Bella, aka, “Sissy.” To say these two are best friends is an understatement. Bella and Willow are soul … More The Story of 2 Sisters, an Extra Chromosome and an Extraordinary Bond

What Doctors Didn’t Tell Me About My Daughter’s Down syndrome

When my daughter, Willow, was born we heard over and over again how weak she was because of her Down syndrome. Doctors and nurses used words like “fragile” and “frail.” Willow’s medical file was filled with even uglier words. “Failure to thrive” topped the list. Hypotonia, or low tone, quickly followed. Every word wreaked of weakness. … More What Doctors Didn’t Tell Me About My Daughter’s Down syndrome