If you’re ever wondering what kind of day Willow is having, flip her over.
This dirty derriere is a sign of good day. It’s also a sign that I need to mop. Bloody Playdough.
If you can’t tell, Willow is a master tush traveler. A butt scooter, is another way to put it. Hardwood, carpet, sand or pavement, this girl can get around via her bum. Quickly, too.
While many marvel at her posterior power, others question it.
“Why isn’t she walking yet?”
“Is that normal?”
“Will she ever walk?”
It doesn’t help that Willow turns 3 in another month. Most kids her age are running races around their houses. Willow is content bringing up the rear on her rear. Obviously her inability to walk raises eyebrows and questions no matter where we go.
I get it.
It only hurts when people equate her mobility to her mental capacity, as if she’s not smart enough to know how to walk. That’s far from the case.
Low muscle tone has been Willow’s biggest obstacle. It’s one of the defining characteristics of Down syndrome. Doctors and therapists call it hypotonia and it affects every muscle in Willow’s body. It’s why Willow has been in physical therapy twice a week since infancy. It’s also why Willow’s speech is delayed. Hypotonia is why most of the milestones come later than usual. It’s also why we celebrate them with more intensity. This girl works hard for everything.
Of course, hypotonia can come in varying degrees. That would be why some children with Down syndrome walk sooner than others. But, let me assure you, Willow will walk.
Let me also assure you that we’ve tried every trick in the book to get her there faster. Her muscles, for the most part, are ready. She’s proven that by taking several steps on her own. I think the biggest hurdle at this point is desire.
Why walk, when you dream of flying?
Willow knows where she wants to go. Right now, scooting gets her there and it’s a lot less work than walking. She doesn’t care if her choice to sit makes her stand out. She doesn’t care if her shorts are in shambles. She doesn’t care if her booty shaking leaves some shaking their heads. She’s The Mighty Willow, strong in her convictions, unshaken by what others think.
Lord, may she never change….. And, might I add, thank you for the blessing of bleach.