When My Daughter’s Running Away Almost Had Me Walking Away From Others

When I hear the word “elopement,” I like to think of my parents. They ran off and got married on leap year day of 1968. That kind of elopement sounds fun and exciting. Unfortunately the kind I’m dealing with these days is the exact opposite. In fact, it’s the stuff of nightmares, reoccurring ones.

My youngest daughter, Willow, loves to run away. Sometimes it starts as a game, other times she just gets distracted and wanders. At 4 1/2 years old, I understand curiosity and playfulness have a lot to do with it, but Willow’s wandering is different than that of  a typical toddler because of her extra chromosome. She has Down syndrome. Because of that, Willow often doesn’t understand the difference between what is safe, what is dangerous and what is deadly.

20170421_084433

Elopement, as crazy as it sounds, is a scary reality for many parents and caregivers of individuals with Down syndrome, but not everyone struggles with it. From what I’ve read and heard, this issue will likely get better with time, but it will take a lot of work, patience and vigilance. In the meantime, I’ve been told I should invest in some good locks as well as alarms for all the windows and doors.

Sounds like prison.

I guess this is the point where I should be thankful we don’t invite people over much. Well, I guess there was that one time we invited the entire neighborhood over to our house….

It was last summer. Being new to the area, we thought it would be fun to host a party out of our garage as a way of introducing ourselves and meeting our neighbors. We served root beer floats and put buckets of sidewalk chalk out for the kids.

Things were going great until my husband decided to take his eyes off Willow for approximately 10 seconds. Seriously, that’s all it took.

It was dusk. We live a block away from a river. Our back yard is a small forest of trees. A black bear had been roaming our neighborhood at night all summer long. To say I freaked out when my husband told me he lost track of Willow is an understatement.

The good news is, Willow was safe. A neighbor found her trying to get in the door of the guest house above our garage. She had climbed 2 flights of stairs to get there. The bad news is, my neighbors now know what a freak I can be under stress. Whatever. At least the root beer floats were yummy.

I feel like this whole elopement thing is leading me into isolation. It’s like the locks and alarms on our doors aren’t just for Willow. They’re keeping her in while making me want to shut out the world.

If I’m not dying of embarrassment, like the night of the neighborhood party, then I’m holding my anger or tongue or tears because of something someone said about Willow’s quick little legs. I can’t leave the house without her trying to leave my side, so it’s usually inevitable that someone cracks a joke or offers advice on how to “solve my problem.”

Please know, I’ve tried. If there was something I could do to keep my child safe I would do it.

I am doing it.

I actually got mad at my husband the other week for telling his co-workers about the measures we’ve taken to keep Willow safe at night, to prevent her from wandering out of her bedroom. I told him I was afraid someone was going to misunderstand and question our love for our daughter.

How could anybody….

Willow is what keeps me awake at night. She is the reason I scream like a crazy person in front of a neighborhood of people. She is the reason I choose to live in a house, turned prison. She’s what keeps me running, no matter how much I feel like giving up some days.

And she’s the reason I’ll keep going out that door… even though those locks make it so easy to stay inside.

20180208_123015

I realize, as much as this elopement stuff sucks, I cannot let the exhaustion, embarrassment, ignorant comments or unwanted advice chase me into isolation. It’ll only make the problem worse.

If I don’t understand Willow’s wandering, how I can I expect others to?

This is the part of Down syndrome that scares me. It’s like my daughter thinks she’s invincible. Granted she survived heart surgery, hernia surgery, a cancer scare and a bout of neutropenia, but still, the girl has got to understand we live in Minnesota. It’s also winter. Every attempt to get out the door is usually made without a jacket.

What is she thinking?

20170125_181111

What am I thinking?

I cannot let perceived judgement stop me from going out that door. I can’t let it stop me from talking to people. I can’t stop my husband from sharing our struggles with his co-workers.

I can’t run away and chase my daughter at the same time.

She needs me to fight for her. She needs me to show people the hard parts of this journey so they don’t go on thinking it’s all rainbows and unicorns and smiles 24/7. She also needs me to keep walking out that door, with her, so the world can get to know her. Because, while things aren’t always easy, they are definitely worth it. She’s worth it.

20180208_122750

So, I’ll keep running…

 

 


2 thoughts on “When My Daughter’s Running Away Almost Had Me Walking Away From Others

  1. My daughter is almost 6 and we’ve had similar situations. She has walked (ACROSS THE STREET) away from our home on a very busy street; she disappeared in the basement of the church during fellowship; another day she actually walked out of church and halfway across the parking lot! In stores; I feel like I have to have a death-grip on her to prevent her from getting lost and she’s getting to big to put in the cart (plus she hates it). I have actually looked into Autism service dogs whose primary job is anchoring, meaning they are big, heavy dogs that your child is attached to so they can’t run off. I feel like even considering that means I’m a rotten parent that can’t keep track of her own child. I know that my county has a program where they provide a GPS bracelet that your child can wear and in the event of elopement, you can call 911 and they can locate her. . . . I just feel like the time it would take to do that would be absolute torture. I would rather prevent the elopement then react to it after she’s already gone.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s