Day 11 – Down Syndrome Awareness Month

Day #11

According to a survey conducted by world-renowned geneticist and Harvard graduate, Dr. Brian Skotko, 99% of people with Down syndrome said they were happy with their lives and 97% said they liked who they are.

If someone asked me if I like myself, I’d say “no.” I have so many things I’d like to improve. I’m impatient, loud and way too particular. I have no sense of style, unmanageable hair and am horrible at multi-tasking.

In a study of 3,150 people, 97% of those with Down syndrome said they liked who they are.

Can we just sit on that statistic for a second?

I bring up Dr. Skotko’s finding because I think so many people in this world feel sorry for individuals who have Down syndrome. Personally, I’ve had many people say “I’m sorry” after hearing of our youngest daughter’s diagnosis. Others have used looks in place of words. Pity and sympathy are easy to spot.

We love our daughter, Willow, and I’m pretty darn sure she loves herself. Spend a few minutes with her and I think it’s pretty evident that she’s happy with her life, also.

There is no reason to apologize.

Willow is not to be pitied, in fact, she should be looked up to. She is an example of how we should all love ourselves and find ways to love our lives.

Willow is my inspiration.


She can be yours too.


If you’d like to learn more about Dr. Skotko’s survey, visit:

2 thoughts on “Day 11 – Down Syndrome Awareness Month

  1. Jenny,

    I just want to thank you for “The Mighty Willow” posts. We read all of them and look forward to the day when I can meet that amazing girl of yours.

    Paula and I think of you guys often.


    Uncle Jim and Aunt Paula

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