Day 15 – Down Syndrome Awareness Month

Day #15

The saying “God only gives special children to special people” is a lie.

If this were true, how do you explain all the children with Down syndrome waiting for adoption?

How do you explain the ones who are aborted?

How do you explain me?

I swore 2 times today. I don’t think I’m very special.

Believe me, I’m not happy about swearing. I’m just having a really, really, really bad day. Ask my husband. He was on the other end of the phone when I dropped my dirty words while venting. The kids were outside. I’m not THAT naughty.

While we’re on the subject of sayings, it’s true that when parenting a child with special needs, “the highs are higher and the lows are lower.” Today, I’m writing from the bottom.

Long story short, Willow got new orthotic braces today. Not only are they too long for her, but they’re more restrictive than her past pairs. We’re taking steps back, not forward. Actually, we’re not taking ANY steps at the moment as her braces DO NOT FIT!

Sorry for the capital letters. That was me yelling. I told you I wasn’t special.

madshoe
Willow, mad because she doesn’t like her new braces and shoes. Every time she attempted to walk she’d say “OWWW!”

Special kids are NOT born to special parents. We’re not worthy of any pedestals. We’re just moms and dads trying our best to raise our kids. We make mistakes, we sometimes swear, we sometimes cry, we sometimes yell… just like any other parent. Telling us we’re special can makes us feel worse when we mess up. Giving us the title of “special” also separates us. Please don’t separate us, especially on a day that I already feel so lonely…

I’m not special. I’m just a mom, raising 3 kids, one with an extra 21st chromosome. And at the moment, I’m trying not to swear again as I think of the dog crap on the bottom of my daughter’s shoe. The only pair of shoes she can wear to school tomorrow, as the pair I bought at Target today only fits her new braces. You know, those special braces THAT DON’T FIT!

I need ice cream.

swinging
You can’t see it, but Willow has dog poo on her shoe in this picture. I didn’t know it at the time, either. Thank God, as it was one of the nicer moments of the day.
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