Day 25 – Down Syndrome Awareness Month

Day #25

Down syndrome is not a disease. Willow is not suffering.

Does this look like a girl in pain?

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Willow is a happy little girl. At the moment, she’s also a healthy little girl. She is not suffering!

Willow’s extra 21st chromosome cannot be cured. It isn’t going away. Medicine won’t do anything for it. Down syndrome is a part of my daughter, just like her eye color and hair color.

Down syndrome is not a disease. It still shocks me whenever I hear people refer to it as such. In fact, a few years ago a freelance reporter for CNN even made the mistake. I wrote that reporter an open letter. You can read it by clicking HERE.

My letter was picked up by several social media sites and shared by thousands across the world. I write this not to brag, but to show how important this is to families of individuals with Down syndrome.

Calling Down syndrome a disease isn’t just a mistake. It’s insulting. It implies pain, suffering and also the idea that Down syndrome is contagious.

The assure you… the only thing contagious about my daughter is her laughter.

 

 

 

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