What Doctors Didn’t Tell Me About My Daughter’s Down syndrome

When my daughter, Willow, was born we heard over and over again how weak she was because of her Down syndrome. Doctors and nurses used words like “fragile” and “frail.” Willow’s medical file was filled with even uglier words. “Failure to thrive” topped the list. Hypotonia, or low tone, quickly followed. Every word wreaked of weakness. … More What Doctors Didn’t Tell Me About My Daughter’s Down syndrome

On This Day

On this day, two years ago, we handed our youngest daughter, Willow, to a surgeon and our fears to God. On this day, two years ago, we learned that an ordinary looking man can do extraordinary things with a heart the size of a walnut. His name is Dr. Harold Burkhart, but we call him … More On This Day