Day #25 Down syndrome is not a disease. Willow is not suffering. Does this look like a girl in pain? Willow is a happy little girl. At the moment, she’s also a healthy little girl. She is not suffering! Willow’s extra 21st chromosome cannot be cured. It isn’t going away. Medicine won’t do anything … More Day 25 – Down Syndrome Awareness Month
Day #24 Children with Down syndrome are more likely to get leukemia. This scares me. One of Willow’s friends was diagnosed with leukemia. My heart literally aches thinking about what that sweet little girl and her family have been through and are still going through! If there is any good news, it’s that children with … More Day 24 – Down Syndrome Awareness Month
Day #23 There is a 50-100% incidence of obstructive sleep apnea in individuals with Down Syndrome, with almost 60% of children with Down syndrome having abnormal sleep studies by age 3.5 – 4 years. The overall incidence of obstructive sleep apnea increases as children grow older. (www.ndss.org) Willow is a restless sleeper. She always has … More Day 23 – Down Syndrome Awareness Month
Note: Today’s post is written by Willow’s dad, Kip. Day #22 Some people associate Down syndrome with a lack of intelligence. Don’t be one of those people. Just like typical children, Willow learns best through imitation. She closely studies what “her” people (other kids) are doing and then copies them. She usually refuses … More Day 22 – Down Syndrome Awareness Month
Note: Today’s post is written by Willow’s dad, Kip. Day #21 Down syndrome is a life changing diagnosis, but not in the way some might expect. A friend from Fargo always says, “If you want to hear God belly laugh, tell Him YOUR plans.” My plan was to get married, to have two kids, and … More Day 21 – Down Syndrome Awareness Month
Note: Today’s post is written by Willow’s dad, Kip. Day #20 The 21st chromosome is magnetic. I don’t have any scientific proof, but anecdotally, it appears my youngest daughter’s blood contains metal shavings or other magnetic devices, because people are attracted to her. Since she has Down syndrome, maybe it’s the extra chromosome creating extra … More Day 20 – Down Syndrome Awareness Month
Day #19 Some people believe that life ends when you have a child with Down syndrome. I’m here to tell you the opposite. We. Have. Fun.
Day #18 Willow is not a Down syndrome child. Willow is a child with Down syndrome. Down syndrome is a part of Willow. It is not her identity. Willow is a child, first. A beautiful one, I should add.
Day #17 Even if you don’t “mean it that way,” the “R-word” is offensive. If a word has been reduced to a letter, then it’s good idea to stay away from it. Just like it’s not ok to use the “n-word,” it’s not ok to use the “r-word.” Those words are offensive. They’re hateful. They’re … More Day 17 – Down Syndrome Awareness Month
Day #16 Two types of procedures are available to pregnant women: screening tests and diagnostic tests. The screening tests estimate the risk of the baby having Down syndrome. Diagnostic tests tell whether or not the baby actually has Down syndrome. (www.nads.org) I declined every optional test while pregnant with all 3 of my children. For … More Day 16 – Down Syndrome Awareness Month