It’s 3/21, a day to educate and celebrate! That’s because it’s World Down Syndrome Day! Why 3/21 you ask? That’s because Down syndrome occurs when someone receives 3 copies of the 21st chromosome, so March 21st, aka 3/21, makes it the perfect time to talk about Trisomy 21 (the fancy shmancy name for Ds). Because … More World Down Syndrome Day 2017
Knock! Knock! Who’s there? 40! 40, who? This isn’t a joke, people. I’m about to turn 40! Like, in a few weeks! Somebody pass the chocolate. The dark kind, because I hear that’s the best for your health. I guess I have to worry about that stuff now. When I was younger, I dreamed of … More The Pain of Growing Older
When my daughter, Willow, was born we heard over and over again how weak she was because of her Down syndrome. Doctors and nurses used words like “fragile” and “frail.” Willow’s medical file was filled with even uglier words. “Failure to thrive” topped the list. Hypotonia, or low tone, quickly followed. Every word wreaked of weakness. … More What Doctors Didn’t Tell Me About My Daughter’s Down syndrome
I don’t know what to call it. Ironic? Nuts? Cray Cray? Or is that too 2016? It happened today. At church. I was talking to someone about why families who have children with special needs often stay away from church. Sadly, many have lost their faith. Others, just don’t feel like the church has a … More Stick A Fork In It 2017!
Most newborns go home with some goodies. Diapers, wipes, maybe some formula samples. Willow got them all. She also got a book. While the Pampers were for her, the book was intended for me and my husband. I guess you could call it a Down syndrome primer. I was told I really should read it. … More The Book I Wish They Would Have Given Me
He was going one way, she was going the other. It could have been ugly. Thankfully, their collision was softened due to both of them looking up at the last moment. They both remained standing and more importantly, smiling. “I’m sorry” quickly followed, but not from the person I expected. Laken, my almost 10 year … More What Happens When Life Happens
You’re looking at the worst family photo of all time. Obviously, the picture quality is really poor. My oldest daughter is missing a chunk of her head. Willow has red zombie eyes. And, I look like I haven’t slept or combed my hair in a week. I suppose that’s because there’s some truth in there. … More The Worst Family Photo of All Time
“Bye, Willow!” It’s something I’ve heard probably a thousand times. But this time, it was different. This time the words were felt, not just heard. They came from a little boy on Willow’s first day of preschool. That was a hard day for me. From my perspective, I had just put my small, fragile, beautiful … More The power of a goodbye
She didn’t even say “bye bye.” No kiss. No hug. No tears. Well, at least on her end. It’s Willow’s first day of school. I’ve dreamed of this day, wondered what it would be like. Now, it’s here. I left her in her classroom, playing. She was so busy cooking on her fake stove that she … More My Empty Nest
Since Willow’s birth, I’ve been learning what it means to fully trust God. It means letting go, when you want nothing more than to hold on. It means being comfortable with the uncomfortable. It means praying and believing He’s got your back, even when the road in front is unfamiliar and a bit scary. This … More Road Trip!