The hardest part of this journey is seeing Willow’s worth but knowing some will always view her as unworthy. Unworthy of respect. Unworthy of a conversation. Unworthy of equal opportunity. Unworthy of a living wage. Unworthy of inclusion. Unworthy of love. The hardest part of this journey is knowing that no matter how amazing Willow … More The Hardest Part of this Journey…
Once upon a time, I used this blog like a therapist. I wrote, I processed, I released and I healed. This journey we’re on is full of highs and lows and the ride between the two often leaves my stomach in knots. Writing helps me unravel those tangled up feelings. Unfortunately, we’re at a point … More Where We’re At
I get it. I understand why we’re here. She doesn’t. My daughter, Willow, knows she should be in school. She gets that Sunday’s are church days, Wednesday nights are for Awana. Stores are for exploring and restaurants made for eating. But we’re not doing any of those things. Life is at a standstill. Willow gets … More Forgotten
Everything seems surreal these days. People are walking around in masks. Stores are putting limits on toilet paper and canned soup. Temperature checks are standard at the dentist and eye doctor. And my youngest daughter, Willow, is turning 7! Crazy, right? S-E-V-E-N. How is this happening? Is this all a dream? Nope. Whether I like … More It’s Her Birthday and I’ll cry if I Want to!
A good friend of mine once said, “I believe the children are our future. Teach them well and let them lead the way.” Her name was Whitney. Whitney Houston. Our friendship started when I was in elementary school. To be honest, it was a little one sided. Whitney would do all the talking. I would … More I Believe The Children Are Our Future…
A few people have asked me if I’ve stopped blogging. The short answer is “no.” The long answer? I don’t have time. And when I do have a spare moment, I don’t have words. I want to write. It’s my release. It’s my “thing.” I’m just having a hard time finding the words to describe life … More My Return And (Temporary) Farewell
As a parent you hope you can teach your kids a few things. That is our job, after all. That, and embarrassing our kids when they become tweens and teens. Or are those considered perks? I digress… While I’m trying my best to be a good teacher, I am amazed at how many things my … More The Unexpected Thing I Learned From My Daughter
My 5 year old daughter throws fits. She kicks, she screams, she runs. When she misses her nap, it’s worse. When playing with other children, my daughter sometimes hits. Most of the time it’s out of anger. Sometimes, it’s just for fun. At times, my daughter makes it her mission to do the opposite of … More The Pressure of Raising a Child With Down Syndrome
Day #25 Down syndrome is not a disease. Willow is not suffering. Does this look like a girl in pain? Willow is a happy little girl. At the moment, she’s also a healthy little girl. She is not suffering! Willow’s extra 21st chromosome cannot be cured. It isn’t going away. Medicine won’t do anything … More Day 25 – Down Syndrome Awareness Month
Day #19 Some people believe that life ends when you have a child with Down syndrome. I’m here to tell you the opposite. We. Have. Fun.