The Story of 2 Sisters, an Extra Chromosome and an Extraordinary Bond

“Sissy!” It’s the clearest word in Willow’s vocabulary. It’s also the word she says most frequently. I’m talking at least 50 to 60 times a day. I kid you not. Just ask the “kid” she’s calling for, Bella, aka, “Sissy.” To say these two are best friends is an understatement. Bella and Willow are soul … More The Story of 2 Sisters, an Extra Chromosome and an Extraordinary Bond

My Letter To Gluten

Dear Gluten, I’m sure many people (including my husband) will think it’s odd writing a letter to you, but for me, it’s the only way to say goodbye. After all, the mere mention of your name sometimes makes my heart ache as if you’re a real person. I’m not ready to lose you. Ok, you’re … More My Letter To Gluten

Pass The Spaghetti

3 years ago in October, I put Willow’s life in the hands of a heart surgeon. 2 years ago in October, Willow was diagnosed with a rare blood disorder after a leukemia scare. 1 year ago in October, a nasty bacterial infection caused Willow to miss Halloween and spend a few nights in the hospital. … More Pass The Spaghetti

On This Day

On this day, two years ago, we handed our youngest daughter, Willow, to a surgeon and our fears to God. On this day, two years ago, we learned that an ordinary looking man can do extraordinary things with a heart the size of a walnut. His name is Dr. Harold Burkhart, but we call him … More On This Day