The hardest part of this journey is seeing Willow’s worth but knowing some will always view her as unworthy. Unworthy of respect. Unworthy of a conversation. Unworthy of equal opportunity. Unworthy of a living wage. Unworthy of inclusion. Unworthy of love. The hardest part of this journey is knowing that no matter how amazing Willow … More The Hardest Part of this Journey…
Everything seems surreal these days. People are walking around in masks. Stores are putting limits on toilet paper and canned soup. Temperature checks are standard at the dentist and eye doctor. And my youngest daughter, Willow, is turning 7! Crazy, right? S-E-V-E-N. How is this happening? Is this all a dream? Nope. Whether I like … More It’s Her Birthday and I’ll cry if I Want to!
You’re looking at the Christmas card that never made it to the printers. If I’m being honest, it never even made it to the website that magically turns pictures into cards. So, I guess you’re just looking at a picture. It’s off-center, kinda blurry. There’s a pile of stuff in the corner. My son is … More 2020 Vision
As a person who writes a blog, it sucks to be struck wordless. I had a 2 hour drive home from Willow’s doctor appointment today and that line is all I could come up with. That’s because I am stinking speechless (emphasis on stinking as we spent a total of 4 hours in the van … More When God Is The Only Answer
The day Willow was born, my husband and I made a decision to be open and honest with our other children about their new sister’s health and diagnosis. We kept it simple and left it open for questions. Ages 4 and 6 at the time, we told Bella and Laken that their new sister had … More When You Don’t Know What To Say
Music has always moved me. All kinds of it. In my younger years, I was at home in the mosh pits and lights of Lollapalooza. Around college, I fell in love with the haunting piano poetry poured out by George Winston. These days, I find myself jumping with Justin Timberlake one minute and twisting to … More He’s Already There
Two and a half years ago, a routine blood test led doctors to tell us that they thought our youngest daughter, Willow, had leukemia. They were wrong. Unfortunately, the celebration was short lived. Turns out, Willow’s wonky blood numbers were due to a rare blood disorder called Chronic Benign Neutropenia. For those unfamiliar, neutropenia is … More The Power of a Little Hope
I don’t know what to call it. Ironic? Nuts? Cray Cray? Or is that too 2016? It happened today. At church. I was talking to someone about why families who have children with special needs often stay away from church. Sadly, many have lost their faith. Others, just don’t feel like the church has a … More Stick A Fork In It 2017!
He was going one way, she was going the other. It could have been ugly. Thankfully, their collision was softened due to both of them looking up at the last moment. They both remained standing and more importantly, smiling. “I’m sorry” quickly followed, but not from the person I expected. Laken, my almost 10 year … More What Happens When Life Happens
You’re looking at the worst family photo of all time. Obviously, the picture quality is really poor. My oldest daughter is missing a chunk of her head. Willow has red zombie eyes. And, I look like I haven’t slept or combed my hair in a week. I suppose that’s because there’s some truth in there. … More The Worst Family Photo of All Time