My Perfect Blog Post

This sentence is driving me crazy. Yes, the one you just read. It’s driving me bat bonkers. Why? Because it’s not perfect. No matter how many times I’ve written it and rewritten it, it’s still not perfect. I blame my former career in television news. As a producer, I learned that if you want to … More My Perfect Blog Post

Never Give Up

This girl! Tell her to crawl, she scoots on her butt. Tell her to walk and she crawls! I’m ashamed to say that I had given up the dream of Willow crawling. After all, Willow is a darn good butt scooter, she hates tummy time and seems more interested in walking than getting around on … More Never Give Up

The Ugly Truth

Warning: If you’re looking for a cheery, inspirational post, come back some other time. This one promises to be dark, ugly and depressing. Still reading? Don’t say I didn’t warn you. I’m angry. I’m angry that life is so bleeping hard sometimes. I’m angry that swearing is naughty, because it feels really good to say … More The Ugly Truth

On This Day

On this day, two years ago, we handed our youngest daughter, Willow, to a surgeon and our fears to God. On this day, two years ago, we learned that an ordinary looking man can do extraordinary things with a heart the size of a walnut. His name is Dr. Harold Burkhart, but we call him … More On This Day

The Weighting Game

My head has been spinning for a week now. I thought it would slow down over time, but it hasn’t. It all started last Wednesday. Willow met with her hematologist. Apparently her blood work showed extremely low levels of neutrophils. For those just joining our story, neutrophils are a type of white blood cell needed … More The Weighting Game

From Worry To Wonder

I don’t know when it happened, but it happened. I went from worrying about my daughter’s future to wondering about it. When Willow has born, Down syndrome was foreign to me. I had no idea how her extra chromosome would affect life. The hospital gave me a book, but that just added to the mystery. … More From Worry To Wonder