Prepping For Heartbreak

It’s coming. I’ve read enough and have heard enough to know that it definitely… is… coming. It’s been 21 months since my daughter Willow was born. You’d think I’d have something prepared by now. A response, ready in my pocket. A facial expression reserved only for that moment. A gesture, cocked and loaded. I don’t … More Prepping For Heartbreak

Dear Big Brother

Dear Big Brother (aka “Buh-Buh”), I know I’ve only been around for a year and half, but I can already tell you’re awesome. You’re like a superhero to me. You can do no wrong. That’s why I look up to you! Another reason I look up to you is because you’re taller than me, but … More Dear Big Brother

Being Joyful Always

Be joyful always; pray continually; give thanks in all circumstances, for this is God’s will for you in Christ Jesus. 1 Thessalonians 5:16-18 This quote from the bible looks all cute scribbled on a chalkboard in my dining room, but lately, it’s been annoying me. Be joyful… always?? Is that a joke, God? I know … More Being Joyful Always

You Are My Sunshine

Me Tired. That about sums up how I feel these days. Life is so jam packed with commitments that I feel like my head is in constant cloud. Thankfully… Willow is my sunshine… and as the song goes… she “makes me happy when skies are gray.” Willow has been doing some amazing things lately! Realizing … More You Are My Sunshine

Afraid To Love

“Chronic Benign Neutropenia.” That’s what Willow’s oncologist/hematologist is calling it. After months of head scratching… it’s nice to finally have a diagnosis… but I have to admit… I am going to miss calling it “crazy blood.” So what does this mean? Good question. Right now… it means Willow will be getting injections of Neupogen twice … More Afraid To Love

Dear You….

I’m not usually one to write back-to-back blog posts… but something has been weighing heavy on my heart these past few hours. It all started after searching wordpress for blogs featuring the term “Down syndrome.” I do this frequently… as I find it fun to read about the lives of other families like mine. I … More Dear You….

Stupid Roller Coasters

I hate roller coasters. My aging body just can’t handle em’ anymore. Simply put… they make me want to hurl. Unfortunately… I appear to be stuck on one right now. Earlier this month… we were in a valley. The duel diagnosis of bronchiolitis and a bowel hernia was nauseating. But surgery was a success and … More Stupid Roller Coasters