What Doctors Didn’t Tell Me About My Daughter’s Down syndrome

When my daughter, Willow, was born we heard over and over again how weak she was because of her Down syndrome. Doctors and nurses used words like “fragile” and “frail.” Willow’s medical file was filled with even uglier words. “Failure to thrive” topped the list. Hypotonia, or low tone, quickly followed. Every word wreaked of weakness. … More What Doctors Didn’t Tell Me About My Daughter’s Down syndrome

My Letter To Gluten

Dear Gluten, I’m sure many people (including my husband) will think it’s odd writing a letter to you, but for me, it’s the only way to say goodbye. After all, the mere mention of your name sometimes makes my heart ache as if you’re a real person. I’m not ready to lose you. Ok, you’re … More My Letter To Gluten

Pass The Spaghetti

3 years ago in October, I put Willow’s life in the hands of a heart surgeon. 2 years ago in October, Willow was diagnosed with a rare blood disorder after a leukemia scare. 1 year ago in October, a nasty bacterial infection caused Willow to miss Halloween and spend a few nights in the hospital. … More Pass The Spaghetti